Where you can find us
Upcoming events
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MyoCon 2025
September 18-21, 2025 (Attendee)
Dallas, TX
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ACR 2025
October 24-29, 2025 (Attendee)
Chicago, IL -
BIO Patient Advocacy Changemakers Event
October 26-28, 2025 (Attendee)
Washington, DC -
Vasculitis Foundation Regional Conference
November 8, 2025 (New York, NY)
Previous Events
Gene Therapy Patient Engagement Summit (Speaker)
World Orphan Drug Congress (Speaker)
Rare Mindset Forum (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 Americas (Speaker)
NIH Rare Disease Day (Attendee)
NIH Rare Disease Day (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
Rare Disease Day 2023 Wrapped: What You Need to Take Away (Speaker)
Rare Autoimmune Emerging Leaders Workshop (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 America (Speaker)
Artia Crossroads Conference (Speaker) Photo Credit: Nathan Morgan Photography
STAT Breakthrough Summit East (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)
Global Genes Week in RARE (Speaker)
6th Annual Methods Summit (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
BIO International Convention (Speaker)
BIO International Convention (Speaker)
Nucleate Summit (Speaker)
LGMD Hill Day (Convener)
Rare Trials Summit 2025 (Steering Committee Member and Speaker)
RISE Workshop (Speaker)