Where you can find us
Upcoming events
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Cure LBSL EL-PFDD
August 1, 2025 (meeting support)
Washington, DC
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Nucleate Alumni Summit
August 18-19, 2025 (Speaker)
Boston, MA -
2025 International LGMD Conference
July 18-21, 2025 (Attendee)
Orlando, FL
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Artia Crossroads
August 25-27, 2025 (Attendee)
Nashville, TN
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Rare Trials Summit
September 9-10, 2025 (Speaker)
Boston, MA
Previous Events
Gene Therapy Patient Engagement Summit (Speaker)
World Orphan Drug Congress (Speaker)
Rare Mindset Forum (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 Americas (Speaker)
NIH Rare Disease Day (Attendee)
NIH Rare Disease Day (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
Rare Disease Day 2023 Wrapped: What You Need to Take Away (Speaker)
Rare Autoimmune Emerging Leaders Workshop (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 America (Speaker)
Artia Crossroads Conference (Speaker) Photo Credit: Nathan Morgan Photography
STAT Breakthrough Summit East (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)
Global Genes Week in RARE (Speaker)
6th Annual Methods Summit (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
BIO International Convention (Speaker)
BIO International Convention (Speaker)