Where you can find us
Upcoming events
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Rare Disease Innovation Roundtable
January 22, 2026
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Rare Disease Week on Capitol Hill
February 24-26, 2026
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MDA Clinical & Scientific Conference
March 8-11, 2026
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Center for Innovation & Value Research Methods Summit
March 25, 2026
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ARVO
May 3-7, 2026
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ASGCT
May 11-15, 2026
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Rare Disease Scientific Workshop
May 12, 2026
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Futures National Conference
May 21-24, 2026
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World Orphan Drug Congress
June 9-11, 2026
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United in Vision
June 12-13, 2026
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DIA
June 14-18, 2026
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BIO
June 22-25, 2026
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Rare Trials Summit
September 14-16, 2026
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MyoCon (The Myositis Association's Global Myositis Patient Conference)
September 24-27, 2026
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NORD Breakthrough Summit
October 25-27, 2026
Previous Events
Gene Therapy Patient Engagement Summit (Speaker)
World Orphan Drug Congress (Speaker)
Rare Mindset Forum (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 Americas (Speaker)
NIH Rare Disease Day (Attendee)
NIH Rare Disease Day (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
Rare Disease Day 2023 Wrapped: What You Need to Take Away (Speaker)
Rare Autoimmune Emerging Leaders Workshop (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 America (Speaker)
Artia Crossroads Conference (Speaker) Photo Credit: Nathan Morgan Photography
STAT Breakthrough Summit East (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)
Global Genes Week in RARE (Speaker)
6th Annual Methods Summit (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
BIO International Convention (Speaker)
BIO International Convention (Speaker)
Nucleate Summit (Speaker)
LGMD Hill Day (Convener)
Rare Trials Summit 2025 (Steering Committee Member and Speaker)
RISE Workshop (Speaker)
EveryLife Community Congress (Sponsors and Participants)
Worldwide Clinical Trials Sales Meeting