Where you can find us
Upcoming events
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RARE REV-inar: The Rare Caregiver Report
May 23, 2024
Virtual
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CureDuchenne FUTURES National Conference
May 23-26, 2024
Orlando, FL
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Pharmageddon USA
June 11-12, 2024
New York, NY
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PPMD Annual Conference
June 27-30, 2024
Orlando, FL
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Glaucoma Patient Summit
June 28-29, 2024
Philadelphia, PA
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Global Genes RARE Advocacy Summit
September 26-27, 2024
Kansas City, KS
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Global Genes RARE Health Equity Forum
September 27-28, 2024
Kansas City, MO
Previous Events
Gene Therapy Patient Engagement Summit (Speaker)
World Orphan Drug Congress (Speaker)
Rare Mindset Forum (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 Americas (Speaker)
NIH Rare Disease Day (Attendee)
NIH Rare Disease Day (Attendee)
Rare Disease Innovation and Partnership Summit (Speaker)
Rare Disease Day 2023 Wrapped: What You Need to Take Away (Speaker)
Rare Autoimmune Emerging Leaders Workshop (Speaker)
18th Orphan Drugs and Rare Diseases Global Congress 2022 America (Speaker)
Artia Crossroads Conference (Speaker) Photo Credit: Nathan Morgan Photography
STAT Breakthrough Summit East (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
World Orphan Drug Congress (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)
One Vision for Latin America Forum (Speaker)