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0.75 2026-06-05 https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/96e83083-e2bf-4335-8fb7-b73311612b63/ELF.jpeg Our work Canary Advisors team at the EveryLife Foundation Community Congress, December 2025. https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/4553c52c-65cf-4ff7-abc7-1beba6d82566/0EA36863-2DAC-4714-B2BD-A390810C1D0C.jpeg Our work Engagement with Health and Human Services at the Duchenne and MLD Newborn Screening Addition to the RUSP, December 2025. https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/a1666a4e-cdb4-4da1-a858-e2c7a950bd5a/6A1DDC6C-357F-46A1-A041-7DC6D8C2A9F1+copy.jpg Our work Richie Kahn and Rare Disease Research at MDA 2026. https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/657e7f89-577f-48d0-9693-b746768b0697/7AE7C1CA-EA42-4ADB-ADFB-78788FFE90AD.jpeg Our work Jenn McNary at the Rare Disease Roundtable with FDA senior leadership, June 2026. https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/604806a3-7ce8-4478-95ec-5ab4cb0510d7/427FD8C9-C942-4722-B578-9F4E12B18113+copy.jpg Our work Jenn McNary and fellow advocate Mindy Cameron with Senator Ron Johnson after a briefing on rare disease with the FDA, fall 2025. https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/d923f7d2-bb3c-4390-aec3-40ab2782c841/C578BEEC-D037-4650-B0E7-8EBA8439E0F4+copy.jpg Our work Canary Advisors team at MDA 2026. https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/8df10b2f-aea8-41e1-bbe8-b83b59503129/21706390-A66A-494F-9860-ED26357FA94D+copy.jpg Our work Duchenne community leaders at newborn screening hearing, December 2025. https://images.squarespace-cdn.com/content/v1/635aa3542e183d318fb76c9a/1259e9a1-ece4-4932-9417-9d2c2be4d063/3D77CD54-AF83-46C7-AC1E-BBD89B2EA298+copy.jpg Our work Jenn McNary and Scleroderma advocate Kim Gonzalez at the EveryLife Foundation's Rare Disease Week in 2025. 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